See under ‘Research‘ for our own publications on Advance Decisions
1. GENERAL RESOURCES
The Mental Capacity Act 2005: The Act is set out in full here: Website Link
The Mental Capacity Act Code of Practice 2007 (for health professionals and carers): A copy is available here: Website Link
A Practical Guide to the Mental Capacity Act 2005: Putting the Principles of the Act into Practice. Graham, Matthew, and Cowley, Jakki (2015) London: Jessica Kingsley. Written primarily for health and social care workers, but very accessible to lay readers. Chapter 5 – on advance care planning – includes a section on Advance Decisions.
Prolonged disorders of consciousness: national clinical guidelines. Royal College of Physicians (2013) – Website Link
Government website for information about – and application forms for – a Lasting Power of Attorney (Health & Welfare): Website Link
2. ORGANISATIONS WHO PROVIDE GENERAL INFORMATION ABOUT, AND SUPPORT FOR, END-OF-LIFE CHOICES:
Age UK – The major charity for older people; offers a range of information, including factsheets on Advance Decisions/Advance Statements and Powers of Attorney: Website Link
Compassion in Dying – Charity focusing on end-of-life rights and choices; has a range of information on Advance Decisions and Lasting Power of Attorney, and runs an Information Line: Website Link
Dying Matters – A coalition aiming to raise awareness of issues around dying, death and bereavement; co-ordinates a ‘Dying Awareness Week’ in March each year: Website Link
National Council for Palliative Care – Umbrella charity for those involved in palliative, end-of-life and hospice care: Website Link
healthtalk.org – Has videos of people talking about ‘living with dying’, including Advance Decisions: Website Link
NHS Choices – Includes further information about Advance Decisions: Website Link
NHS ADRT website – Includes a short video about Advance Decisions, and links to a range of further information for the public and professionals (click on ‘key documents): Website Link
3. ORGANISATIONS WHO PROVIDE INFORMATION ABOUT, AND SUPPORT FOR, END-OF-LIFE CHOICES RELATING TO PARTICULAR MEDICAL CONDITIONS:
Alzheimer’s Society – http://www.alzheimers.org.uk
Dementia UK – http://www.dementiauk.org
Macmillan Cancer Support – http://www.macmillan.org.uk
Marie Curie – (Care and support through terminal illness) – https://www.mariecurie.org.uk
Motor Neurone Disease Association – http://www.mndassociation.org The MND Association’s end-of-life guide won the British Medical Association’s ‘Patient Information of the Year’ Award in 2015; End of Life Guide
Multiple Sclerosis Society – http://www.mssociety.org.uk