Resources

See under ‘Research‘ for our own publications on Advance Decisions

1. GENERAL RESOURCES     

The Mental Capacity Act 2005: The Act is set out in full here: Website Link

The Mental Capacity Act Code of Practice 2007 (for health professionals and carers): A copy is available here: Website Link

A Practical Guide to the Mental Capacity Act 2005: Putting the Principles of the Act into Practice. Graham, Matthew, and Cowley, Jakki (2015) London: Jessica Kingsley. Written primarily for health and social care workers, but very accessible to lay readers.  Chapter 5 – on advance care planning – includes a section on Advance Decisions.

Prolonged disorders of consciousness: national clinical guidelines. Royal College of Physicians (2013) – Website Link

Government website for information about – and application forms for – a Lasting Power of Attorney (Health & Welfare): Website Link


2. ORGANISATIONS WHO PROVIDE GENERAL INFORMATION ABOUT, AND SUPPORT FOR, END-OF-LIFE CHOICES:

Age UK – The major charity for older people; offers a range of information, including factsheets on Advance Decisions/Advance Statements and Powers of Attorney: Website Link

Compassion in Dying – Charity focusing on end-of-life rights and choices; has a range of information on Advance Decisions and Lasting Power of Attorney, and runs an Information Line: Website Link

Dying Matters – A coalition aiming to raise awareness of issues around dying, death and bereavement; co-ordinates a ‘Dying Awareness Week’ in March each year: Website Link

National Council for Palliative Care – Umbrella charity for those involved in palliative, end-of-life and hospice care: Website Link

healthtalk.org – Has videos of people talking about ‘living with dying’, including Advance Decisions: Website Link

NHS Choices – Includes further information about Advance Decisions: Website Link

NHS ADRT website – Includes a short video about Advance Decisions, and links to a range of further information for the public and professionals (click on ‘key documents): Website Link


3. ORGANISATIONS WHO PROVIDE INFORMATION ABOUT, AND SUPPORT FOR, END-OF-LIFE CHOICES RELATING TO PARTICULAR MEDICAL CONDITIONS:

Alzheimer’s Society – http://www.alzheimers.org.uk

Dementia UK – http://www.dementiauk.org

Macmillan Cancer Support – http://www.macmillan.org.uk

Marie Curie – (Care and support through terminal illness) – https://www.mariecurie.org.uk

Motor Neurone Disease Association – http://www.mndassociation.org The MND Association’s end-of-life guide won the British Medical Association’s ‘Patient Information of the Year’ Award in 2015; End of Life Guide

Multiple Sclerosis Society – http://www.mssociety.org.uk

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